Yesterday, three of my friends from the house in West Philly where they have graciously welcomed me into their lives on a day to day basis since six months ago, traveled with me for over three hours in my car to visit my rented storage unit in Hagerstown, Maryland. We rented a U-Haul truck near there on the way. By the time we arrived at the storage facility, it was freezing, windy, and starting to get dark. My friends went through nearly every bit of my storage unit and put all of the research materials they could find into the U-Haul. It remains to be unloaded here in West Philly today on Tuesday. They put a padlock on the back door for overnight. I am bent, and, at least for the time being, broken. I could only drive as far as Towson before needing to relinquish the wheel of my car, but even just being a passenger takes a lot out of me. After a while at the storage unit, my hands felt as if they might get frostbite, and I sat in my car for a few minutes with the engine running to warm up as the headlights were trained toward the inside of the storage unit.
Much of the first floor and basement of my friend’s rented house here in West Philly were rearranged and opened up over the last few days, even an old upright piano was trashed, in order to receive the six bookshelf units of my research collection, and as many of the relevant sound recordings and papers as they could find while rummaging through the storage unit in the freezing dark. They were on quite a roll for more than 2½ hours, finding most of the items.
It began to snow.
They soon put the various emptied contents of the storage unit which had been placed on the asphalt roadway outside of the unit back into it, and we began our three- and four-hour treks back to West Philly in my car and in the U-Haul truck. I have in the bank, ironically, the sum of $214, the exact cost of a month’s rental of the storage unit which a kind and generous soul began paying on my behalf two months ago. The U-Haul rental was $180-plus with insurance, gas and tolls must also be paid, so I’m already in the hole again just from the trip to get the research materials so they can be made accessible to me and and I can get back to writing. I don’t know how much my state of mind will be holding me back as I worry from day to day where my next meals are coming from or how my bills can get paid in the meantime, but I couldn’t pass up the opportunity to have these research materials brought here after my friends remarkably suggested remaking the main floor of their house to accommodate them, so I can finish writing my book before the MS overtakes me.
I am now entirely invested into this house in West Philly to, somehow, even with its many distractions, finish writing my book. I am to go back to Johns Hopkins Hospital on Monday for a second MRI on my brain and another neurology appointment, to follow-up on the ones I had there in June, when I was officially diagnosed with the Secondary Progressive form of Multiple Sclerosis. The idea is to see how quickly the disease is causing damage. I am, in fact, getting around better than I was when I moved here in June, seemingly because of the medicine I was put on. I don’t know where the gasoline, tolls, and stamina are going to come from to be able to do this, but I can keep pulling over to recuperate if no one who drives can go with me, at least, I can, if I have enough money for gas and tolls. I already have about half the gas I need in the car.
I still believe the Social Security Administration will approve my application to begin receiving monthly payments under their disability program, but there is nothing to hang onto specifically to believe this is about to happen any day. I will contact the MS Society again, this time for some emergency funds, and hope they can get a couple hundred bucks sent my way, but the red tape involved with doing that will surely be one more thing to distract me and sap the little energy I have day to day. But this is the only way forward that I can figure now as I await the meager inheritance from my aunt’s estate next summer. A recent exchange with my cousin who is the estate’s executor reinforced the idea that this inheritance will be meager, indeed.
Please, if you are able and so inclined, donate anything you can spare to me on Go Fund Me, or with PayPal via my Gmail address if you know it, where I will get every penny. (Go Fund Me takes a small cut.) If you want to donate on expectation of a premium such as a printed book or eBook down the road after I manage to finish writing it, you can go to my Authr page and donate there with PayPal after choosing a premium. More bio and other details can be found at the links to my blog pages which are given on that Authr page, but the current situation in which I find myself as described there changed at the end up May when I had my stuff put into storage and came to this dining room in West Philly. I realize this all sounds preposterous, but this is genuinely some of what I’ve been going through. Thank goodness my longtime friend was able to convince his household to allow him to fulfill his long-time promise to keep me from living on the street.
This friend brought along a framed poster from the storage unit yesterday, putting it into the U-Haul truck as soon as he came across it. He brought it into the house and hung it up on a nail sticking out from the top of a window in this dining room where I live, even as nearly all the other items remain to be brought in from the truck later today. It’s a poster from the 2 December 1999 Jingle Bell Jam, a Christmas festival concert at the Oakdale Theater in Wallingford Connecticut, one of the so-called Blackmail Tour concerts Tori was pressed to perform and did perform despite a miscarriage days before, lest any of the sponsoring radio stations play her music even less than they did already. This concert was the day I posted the message on the Precious Things mailing list and elsewhere which inspired a kind gentleman with outsized faith in me and my abilities to ask me to write a book on this music, which has compelled some of us to travel far and wide to experience as much of it as we possibly could. I think of this poster as a personal manifesto: